Testimonios de Pacientes

Historias reales, Gente real.

Testimonios de Pacientes

Price Fighting Hero: Scott Gottlieb

Under Scott Gottlieb’s leadership as the head of the Food and Drug Administration, the FDA has focused on bringing more generic drugs to market to compete with pricier name-brand drugs and help lower prescription drug prices. Competition increases when generic drug and biosimilars are made available and, in turn, the price of patient’s prescription drugs […]

Testimonios de Pacientes

My name is April. My breast cancer drug costs $13,000 a month. This is how I took a stand

My name is April. I live and work in Pensacola, Florida with my wonderful husband and our 11-year-old son. I also have incurable breast cancer. My prescriptions are important. Without them, I’ll die. I’m on a new targeted therapy called Ibrance, which will extend my life and my time with my family — but it costs […]

Testimonios de Pacientes

Drug Prices are Putting My Son's Health at Risk

Duchenne Muscular Dystrophy is the most common fatal genetic disease of childhood, affecting 1 in 3,500 boys.  In 2007, I found out that my 8-year-old son was one of them. We sought the best medical care, but all the doctors could offer for this relentless muscle wasting disorder was a corticosteroid, an anti-inflammatory medicine that […]

Testimonios de Pacientes

Stacy's Story

My name is Stacy Ransom. I’m from Southern California and I live with Crohn’s Disease. Six months before doctors gave my condition a name, I began to experience excruciating, debilitating pain every time I took a bite of food. Because eating sent shock waves through my system, I rapidly lost weight. I worked at a […]

Testimonios de Pacientes

Can I tell you a story?

  My name is Pam Holt. I’m 68 years old, a mom, a grandmother, and a retired first and second grade teacher. I’ve traveled from my home in Indiana to Washington, DC this week. Before I tell you why, and what I hope to do, I want to tell you what led me here. In […]

Testimonios de Pacientes

Skyrocketing insulin prices threaten Oklahoma family

January 29 Lily McCook’s room is full of stuffed animals, horse posters and Harry Potter books. Early each morning, as she sleeps under a fluffy comforter emblazoned with more horses, her favorite animal, her dad, Clayton McCook, quietly administers her blood sugar test with a lightning-fast poke of her finger. Lily has Type 1 Diabetes, […]

Testimonios de Pacientes

Guest Blog: Becky Hall: Herceptin and Humana

January 26 To view the original post, click here. Recently, I had what I consider to be my first real advocacy experience beyond sharing my personal story and experiences with cancer. It’s an important issue that merits sharing, so here’s the scoop. Over the past few weeks, there has been a serious amount of confusion […]