Historias reales, Gente real.
Testimonios de Pacientes
We shouldn’t have to crowdsource the medication that’s keeping us alive.
My name is Allison and I am a resident of Gaithersburg, Maryland. My journey with high drug prices began when I was diagnosed with type 1 diabetes 15 years ago at just 8 years old. I have always been fortunate enough to have a strong support system within the diabetes community. My childhood best friend […]
Testimonios de Pacientes
My name is Gary and I am a retired corporate executive from Cincinnati, Ohio. I am living with polycythemia vera (PV), which is a rare blood cancer. I was diagnosed with PV in September 1997. Since December 2014, I have been taking Jakafi to control the production of my red and white blood cells. Without […]
Testimonios de Pacientes
The COVID-19 pandemic should serve as a wake up call.
My name is Emmabella Rudd, and I’ve been an advocate for insulin accessibility and diabetes research since I was diagnosed with type 1 diabetes at 5 years old. I am an activist and patient advocate, but I’m so many other things as well. I am a student senator at Florida State University. I love art […]
Testimonios de Pacientes
It's hard to even look at my medical bills.
My name is Julie and I’m from Providence, Rhode Island. I was diagnosed with multiple sclerosis in 2007 and, more recently, Crohn’s disease in 2019. I’m currently self-employed and am not sure if I can return to a corporate job full time because my symptoms can be so severe. It feels very lonely at times […]
Testimonios de Pacientes
I had to start stockpiling my insulin.
My name is Elizabeth and I have lived in New Jersey most of my life. I met my husband in high school, and we’ve been together ever since. We love the active retirement community we reside in and all of the friends we have made here. I have a wonderful life. I was first diagnosed […]
Testimonios de Pacientes
Real people like me are struggling.
My name is Laurie and I’m a cervical cancer survivor from Mill Creek, WV. Radiation treatment has left me with many side effects, the worst of which is chronic diarrhea. It is horrible. I am taking three different prescription drugs for these side effects. For nine months, I took Viberzi for chronic diarrhea, and it […]
Testimonios de Pacientes
As patients, we have the power.
My name is Sneha Dave, I am the executive director of the Health Advocacy Summit. I am 22 years old, a lover of the outdoors, and an ulcerative colitis patient. It started for me when I was six years old, had to use the restroom frequently, and was having abnormal symptoms. My mom took me […]
Testimonios de Pacientes
I live at the mercy of drug prices.
My name is Brad and I’m a publishing director living in Santa Cruz, California. I was diagnosed with cystic fibrosis as an infant and I received a double-lung transplant in January 2017. Today, I live at the mercy of immunosuppressive medications that prevent my immune system from destroying my lungs. Thanks to these medications’ steep […]